Day 15 – 1st Clinic Visit

Today was Brennen’s first visit to the clinic for chemo. It was also the first time that he was awake to have his mediport accessed (last time was after surgery and he was asleep).

We were given a numbing cream that we put on 30 minutes before his appointment. The nurses said he did an amazing job letting them insert the needle. It would be hard for any of us to watch them stick a needle in your chest while saying, “you won’t feel anything.” 🙂

His ANC (ability to fight of infection) has dropped so we have to be even more cautious about him being around people. That’s especially hard with this week being Christmas.

After a couple different kinds of chemo were given we were off to get our always-hungry boy some Chipotle and enjoy it at the park while getting some fresh air.

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We Are Home!

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After a couple kinds of chemo and a procedure to put chemo in his spine this morning Brennen was released from the hospital! We are thankful to be back together as a family and that he has been feeling pretty good. He has minor pain and discomfort, which we are trying to manage. He is still getting used to having the Mediport in as well as taking the needed medicine at home.

IMG_5670 While in the hospital Brennen was asked to help reveal the new name of the hospital at a big press conference. He was excited and also nervous about being in front of all the people and cameras but had a good time. He was excited to see himself on the news and to get to meet the hospital mascot, George the Giraffe. The same day he was also able to meet Daniel the Tiger from PBS. 

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We are scheduled to go back to Fresno the following two Mondays for a clinic visit where he will have blood tests and receive more chemo. The 300 mile roundtrip trek will be getting old soon but we are thankful for a dependable van, cheaper gas prices, and good care at Children’s Hospital. On January 5th he will have another bone marrow biopsy and that will determine what the next phase is in his treatment will be.

Please pray that Lord will protect him from any sickness that could potentially send him back into the hospital. We are coming into cold & flu season so we have to be very careful with his immune system being weak and compromised.

Thank you very much for your prayers and encouragement as we walk this “scary adventure” (Brennen’s words) in which the Lord is leading us.

CHRIS

Diagnosis Day

It’s been over two months that we’ve been praying for God to give wisdom to the doctors regarding the unknown bone marrow issues going on in Brennen’s body. Today, we went back for another bone marrow biopsy and it was clear to even Jenny and I as we saw the results. Brennen was officially diagnosed with Leukemia (A.L.L.-B). He will begin treatment Monday morning.

Please remember Brennen and family in prayer as we begin walking down this road. We are confident that we do not walk it alone. God is good and faithful and we trust his plan.

Waiting on God

Monday we went again to have another blood test for Brennen. His counts had been climbing and they climbed again significantly. We are thankful for those good results! The doctor said they wanted to do another bone marrow biopsy because the other doctor and pathologist were very suspicious of leukemia in the earlier biopsy and wanted to clear everything up. Brennen had already been prepped for a biopsy just in case so we went ahead with another one. Unfortunately, the biopsy results came back the same. The doctors don’t have a good answer for why his counts are improving and yet his marrow is still looking “sick.” We praise God for the great improvements in Brennen’s ability to fight infections and bruising. We continue to depend on God’s grace for each day and try to not live beyond that.

In light of Brennen’s improved counts the doctor said we could go on out family vacation that we had planned nine months ago. That was truly a gift of God’s grace because two weeks ago the doctor said it was not going to be possible. Please continue to pray for the doctors to have wisdom as they continue to study the latest biopsy. Please pray that Brennen will stay healthy. Most of all, pray that God will be glorified in this process.

Tests and More Tests

We’ve always known that Brennen is a very special kid. In each parent’s eyes all of their kids are special. Today we received the reports of the bone marrow biopsy and Brennen is definitely special because we’re looking at a very rare case here. The doctors are not exactly sure what it is at this time but it’s one of those more rare bone marrow issues. Since his bone marrow isn’t working he is very susceptible to getting sick because he has no immune system. We’ve been told that if Brennen doesn’t spike a fever in the next day we will be able to leave the hospital and stay local but they will continue to do testing and have sent the samples to other specialists to help with the diagnosis.

The Lord is gracious to order all of our steps and we are very thankful for each one of your prayers. It looks like there’s a long road ahead but we are thankful that the Lord is already prepared our path for us. We will trust him and walk by faith and not by sight.

A Trip to the E.R.

Our whole family had been battling some sickness for a couple weeks and Brennen was not seeming to shake it like the rest of us. His color seemed to be changing and he was very tired (not usual for a 6-year old boy).

We ended up taking him into the E.R. in San Luis Obispo and they ran a blood test. Immediately the doctor told me that they wanted to transfer him to a children’s hospital that could help us better. They were very concerned about his blood levels and said they thought he had leukemia.

A couple hours later we were on an ambulance headed for Valley Children’s Hospital by Fresno (3 hours away).

The “Scary Adventure”

This blog is intended to share updates on Brennen’s journey with family and friends so as to better help them know how to be praying for him.

When beginning this journey Brennen said, “I’m starting my scary adventure.” Though it is scary and there are a lot of unknowns, we do know the God who formed Brennen in Jenny’s womb and know that He is in complete control over everything that happens in our lives.

Our prayer is that God would be glorified through this journey that He has placed us on.